Jeni Beats Cancer

I couldn't hold out until 9am tomorrow's appointment, so I ended up in the ER at 6am today. The ascities  fluid build up went across the abdominal and upwards towards my chest. That was the most painful, felt like a balloon that was pumped too full ,  2 inches beneath the middle of my chest. They drew 4200 ml today and gave me albumin to slow down the process. Hopefully that helps. This past Tuesday I went from 9 am to 730 pm at the clinical drug trial receiving the combo medicine for immunotherapy, clinical MK drug and Keytruda drug. They switched me to this combo just Tues. It is less invasive than chemo and will reach certain areas that chemo will not. It does take more visits as this process is slower to start seeing results. Now I can have space in my tummy to eat and drink anything. My weight is now 135 after fluid draw was done Thanks for reading!

Today I  had another fluid draw, paracentesis from the tummy, this time 4300ml or 17.91 cups of fluid. This time it only took 8 days to build up. This is a bit worrisome, but the Dr agreed to have 60mg of  albumin added back into my tummy, after draining, to help slow the process down. The clinical trial drug in San Antonio , treatment#2 starts in 4 days. It uses my own T cells  and NK cells to fight cancer cells, but it is a slow process. If I can just fend off the fluid growth, this treatment may work for me. I had Ketosis, where my body is burning fat instead of glucose because I don't have enough carbohydrates stored for energy.  I have been avoiding carbs and sweets to prevent feeding the cancer. The Dr told me to eat a more balanced diet , not just juicing veggies&fruits daily as juicing doesn't provide all the nutirents the body needs;  and for me to drink ensure.

The Drs found a blood clot , width of a pinky finger diameter size, after I told them there was very painful bump in my throat. I thought it was a cold sore ; when I swallow, it hurts. They sent me to do a sonogram right away, as normal blood clots you can't feel, but this bump is big. At least it wasn't a new growth there, so that's good. Now, each day, I will give myself a shot in the tummy, called  Lovenox (Enoxaparin) -  , blood thinner, until the clot dissolves. Dr. Jaramillo has put me on biweekly paracentisis, fluid drain from the tummy. At the last drain,  ~1 gallon of fluid was removed. It was definitely more comfortable to breathe and I regained an appetite for couple days. The tumor growing inside is also getting bigger, leaving less room for fluids. The reports of fluid pathology test, shows abnormal cells in the fluid, so its likely advancing into abdominal wall( which we knew) and may be onto other organs.

CT scan shows another 5cm tumor growing on my right ovary and 2 other 1 cm near the outer body wall of abdominal cavity. I'm having a lot of fluid build up. Later on may 11: I have about 3700ml, ~1 gallon drained from my tummy

Feeling pain each day when you wake up is difficult to continuously bear.  I do take pain medicine  but it only lessens the pain. Sharp nerve stingsare still there even with the pain relief. I'm grateful for several family members who have pooled money together to help pay the medical bills..  I'm very blessed that they care and want to try to help. Thank you to all my family. I am trying to stand courageously against this unknown cancer. It is either ovarian or peritoneal cancer. Still unsure after 10months, 10 treatments, and 1 surgery. Continue to fight, that's what my inner voice tells me.