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Dr.Kim called and spoke to us

Dr. Kim, from Stony Brook medical mentioned that for a  chance to survival on this procedure, HIPEC,  I have to eat 1600-1800 calories a day. If I can get my nutrition back up, he will perform the surgery. At least there is still a chance, someone can perform surgery on me, but I need to be stronger. I'm working on eating balanced each day so I can make this happen!
Recent posts

Medical Fund

We have been asked by several people to set up a fund to receive assistance from those who wish to donate.  So here it is: https://www.gofundme.com/jenismedicalfund Thank you for your assistance in every way. Love, Jeni

Just got out of 6days at hospital

It was a tough 6 days. I started getting hospital delirium. My intestines had been blocked by the high opiad painkillers for too long. I didn't realize I was to take miralax 2x a day with the prescription. When it got so impacted, it had ileus. Thank you to friends who sent meals and coconut hydration water. Love you Jeni

Couple more a drains later but the fluid is becoming less in volume

I went in on Sat to do an early Paracentesis. And I knew they wouldn't have a team ready,  but at least by Monday they should right?! After the fluid was drawn, less than 2000ml, because something else is taking up the space that use to grow there..another 8cm tumor near the stomach walls area. It's displacing the fluid to the left and and bowel activity actually seems to stop there. So there is a blockage tumor, that is on the remaining ovary. I have been here for 4 days now, v let's see if they discharge me today. I could use any help you want to lend, whether it'smaking food, or mowing the yard,  please coordinate with Josh. Thank you friend and family, Love, Jeni

One day early ....

I couldn't hold out until 9am tomorrow's appointment, so I ended up in the ER at 6am today. The ascities  fluid build up went across the abdominal and upwards towards my chest. That was the most painful, felt like a balloon that was pumped too full ,  2 inches beneath the middle of my chest. They drew 4200 ml today and gave me albumin to slow down the process. Hopefully that helps. This past Tuesday I went from 9 am to 730 pm at the clinical drug trial receiving the combo medicine for immunotherapy, clinical MK drug and Keytruda drug. They switched me to this combo just Tues. It is less invasive than chemo and will reach certain areas that chemo will not. It does take more visits as this process is slower to start seeing results. Now I can have space in my tummy to eat and drink anything. My weight is now 135 after fluid draw was done Thanks for reading!

Another Paracentesis 5/19/17

Today I  had another fluid draw, paracentesis from the tummy, this time 4300ml or 17.91 cups of fluid. This time it only took 8 days to build up. This is a bit worrisome, but the Dr agreed to have 60mg of  albumin added back into my tummy, after draining, to help slow the process down. The clinical trial drug in San Antonio , treatment#2 starts in 4 days. It uses my own T cells  and NK cells to fight cancer cells, but it is a slow process. If I can just fend off the fluid growth, this treatment may work for me. I had Ketosis, where my body is burning fat instead of glucose because I don't have enough carbohydrates stored for energy.  I have been avoiding carbs and sweets to prevent feeding the cancer. The Dr told me to eat a more balanced diet , not just juicing veggies&fruits daily as juicing doesn't provide all the nutirents the body needs;  and for me to drink ensure.

Blood clot

The Drs found a blood clot , width of a pinky finger diameter size, after I told them there was very painful bump in my throat. I thought it was a cold sore ; when I swallow, it hurts. They sent me to do a sonogram right away, as normal blood clots you can't feel, but this bump is big. At least it wasn't a new growth there, so that's good. Now, each day, I will give myself a shot in the tummy, called  Lovenox (Enoxaparin) -  , blood thinner, until the clot dissolves. Dr. Jaramillo has put me on biweekly paracentisis, fluid drain from the tummy. At the last drain,  ~1 gallon of fluid was removed. It was definitely more comfortable to breathe and I regained an appetite for couple days. The tumor growing inside is also getting bigger, leaving less room for fluids. The reports of fluid pathology test, shows abnormal cells in the fluid, so its likely advancing into abdominal wall( which we knew) and may be onto other organs.